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Gabapentin, anyone?

It's actually working, I think.

Before I was on this generic for Neurontin, Elavil was doing absolutely nothing for my vestibulodynia.

At my last doctor's visit, I practically begged for a vestibulectomy because six years of pain is starting to get old at this point. But he really wanted to wait and exhaust every other option first. And within a few days of that visit, I began my fourth week of the anticonvulsant Gabapentin. Anybody else have good results with this?

I've now noticed that using a plastic applicator for any vaginal medicine is no longer like stabbing myself with a knife. I assume that means it's working...I dunno, I'm so bitter that I half-expect to be vaginally crippled with pain for the rest of my life.
I hope this isn't a redundant post, but I just got this email from NVA.org:
We should ALL bombard them with responses!!!!!
Could you imagine what that might do for the research and awareness for VVS and vulvar pain!!???

Julie P
nvvo.net

***********

Dear NVA Friend,

 

Producers at The Oprah Winfrey Show are working on a possible upcoming show on vulvodynia.

 

If you are a single woman in your 20s or 30s who is worried that you may not be able to get married or have children in the future because of your vulvodynia and/or a non-Caucasian women of any age who is willing to be on the show, as soon as possible, send an email to chris@nva.org with the following information:

 

-          Name

-          Age

-          Ethnicity

-          Summary of your history with vulvodynia, i.e., When were you diagnosed?  How many doctors did you visit before receiving a correct diagnosis?  Have any treatments helped you?  Is your vulvodynia better, worse or the same?

-          How has vulvodynia affected your ability to pursue a career and/or engage in social activities?  How has vulvodynia affected your sex life, marriage or relationships? 

-          Contact information - phone number and email address

-          Current photo (attachment)

-          Statement that you give NVA permission to forward your contact information to producers at The Oprah Winfrey Show. 

 

Please try to limit your summary to 1-2 paragraphs. 

 

Thanks very much,

 

Chris

 

----

 

Christin Veasley

Associate Executive Director

National Vulvodynia Association

PO Box 4491

Silver Spring, MD  20914

401-398-0830

chris@nva.org

 

I hope this isn't a redundant post, but I just got this email from NVA.org:
We should ALL bombard them with responses!!!!!
Could you imagine what that might do for the research and awareness for VVS and vulvar pain!!???

Julie P
nvvo.net

***********

Dear NVA Friend,

 

Producers at The Oprah Winfrey Show are working on a possible upcoming show on vulvodynia.

 

If you are a single woman in your 20s or 30s who is worried that you may not be able to get married or have children in the future because of your vulvodynia and/or a non-Caucasian women of any age who is willing to be on the show, as soon as possible, send an email to chris@nva.org with the following information:

 

-          Name

-          Age

-          Ethnicity

-          Summary of your history with vulvodynia, i.e., When were you diagnosed?  How many doctors did you visit before receiving a correct diagnosis?  Have any treatments helped you?  Is your vulvodynia better, worse or the same?

-          How has vulvodynia affected your ability to pursue a career and/or engage in social activities?  How has vulvodynia affected your sex life, marriage or relationships? 

-          Contact information - phone number and email address

-          Current photo (attachment)

-          Statement that you give NVA permission to forward your contact information to producers at The Oprah Winfrey Show. 

 

Please try to limit your summary to 1-2 paragraphs. 

 

Thanks very much,

 

Chris

 

----

 

Christin Veasley

Associate Executive Director

National Vulvodynia Association

PO Box 4491

Silver Spring, MD  20914

401-398-0830

chris@nva.org

 

Menstrual Cup

Have any of you used a menstural cup?
How did it interact with yeast/bacterial infections if any?

thanks,

Cristina Escalante

Things are looking up!

I have awesome news! I placed an application to get my hospital bills reduced, and they reduced 100% of my bill. So I'm off the hook! Also, I went to see a naturopath and she's helping me, and I was referred by a friend so she reduced the price and I can make payments on my bill! I'm so excited to be well again.

:)

Please Help!

I have been having vaginal problems for the better part of a year and it's driving me insane...

It all started last year when I broke up with my ex.  He accused me of giving him an std and I flipped out and told him I didn't have one.  At this point I had been with my current boyfriend (we're together now) for a few weeks and we weren't sleeping together yet. So I went to the health center at my school and was tested. So was my boyfriend.  Our tests both came back negative. My ex also went to get tested and his came back negative as well (the doctor told him it was a harmless infection of his foreskin).  So my boyfriend and I began sleeping together.  

A couple of months later I started to experience extreme vaginal pain and itching. I went to the doctor and it was found that I had a strep and e. coli infection in my vagina. Not a very fun time. So I took the meds and it cleared up.  

Then, over the summer i felt like the symptoms were returning. I went to my obgyn and she said by the way it looked she thought I had both a yeast and bacterial infection. Well the results came back and they were negative for both.  So almost every month since then I've had this irritation.  It lasts for about a week and my vulva becomes extremely irritated and raw with some slight itching.  My discharge is usually thicker during this time too.  However there is no strong, unusual smell or color, its pretty much just very white.  

So my question is what the hell is wrong with me? It's not yeast (I was tested again another month and the results were negative again!), it doesnt seem to be bacterial, and my boyfriend and I are faithful/were both tested for STDs. He doesnt have any symptoms of anything... Could my ex have given me something?  Could it be stress related? I just don't feel normal anymore.. I'm so sick of worrying all the time about if this is going to come back or not. It's so frustrating.. someone please help!

Dec. 5th, 2007

anybody tried acid redux or aloe vera leaf concentrate? i'm just poking around online looking at alternatives.... pelvic physical therapy seems to indicate my pain is mostly centered on the urethra and probably IC related. i take elmiron and am about to try a new "natural" remedy ("cystoprotek") but would like to hear about others' experiences with any of this stuff.... i also got some lidocaine ointment recently that could serve its purpose. today's been a pain day. seems like the PT sometimes stirs things up and it's worse....

I'm new!

Hello vagina friends!

I found this group and thought maybe it could help give me a little support with my situation.
I have been living on my own since April. Just embarked on a new life of independence, struck out on my own, and in May I got Mononucleosis, missed a lot of work because of that, then in June, I got appendicitis, had to have my appendix removed, so the Hospital bills have been piling up. I make a little over minimum wage, so I can't really afford to pay 3,000 dollars in Hospital bills.
On top of all of that, I have been suffering from recurring vaginal infections. All of which I try to treat myself, but treatments don't tend to last for long. It worked for awhile, but my diet was too strict for me to keep up, also, I tend to not have much money for food, so I'll eat whatever hand outs I'm given. I've tried acidophilus supplements, yogurt, boric acid, monistat, I switched to using cloth pads, everything. I keep trying to treat myself, because, I don't really have much money for a doctor, and I don't really trust doctors, especially ones that just treat symptoms, not my overall health, and in turn making more problems. Can't really afford a ND, though I would rather go with Naturopathic medicine. Also I don't drive, so getting there is also an issue.
The whole situation could be worse, but it still just sucks.

Damn yeasty vagina!

Reading your stories however, have helped me. I feel like I'm not alone, and there is still hope. And hopefully I can figure all of this out, and finally have a normal sex life for once.

Help!

I'm a little sad to see that this community doesn't appear very active. But I really hope to speak to someone because my yeast infections have been ruining my life since June 2005.

They're constant, and always follow sexual activity or any kind of self touch. NOTHING works, including prescriptions. Even homeopathic medicines, while briefly effective, don't seem to solve the underlying problem.

What's worse is that I've developed a psychological aversion to sex and it keeps me from getting substantially lubricated. This is killing me...somebody tell me you've experienced this and found the answer.

A diagnosis that makes sense

So despite having the cyst removed, I have still been in pain. And now I have a diagnosis: interstitial cystitis,

Basically, the best way to control it is to stop eating and drinking all normal foods. I have found a fairly active LJ community about it and I am seeing a Naturopathy doctor and a Urologist who are both on the same page on things to help. Apparently a very controlled diet can be very successful in removing the pain.