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Interstitial Cystitis and Pregnancy

Hello All,

I'm I'm a 24-year-old woman with polycystic ovarian syndrome (PCOS), interstitial cystitis, and an undiagnosable auto-immune condition. I'm also fifteen weeks pregnant after eight or nine months of fertility treatments. So far my pregnancy has been wonderful, most of all because my auto-immune symptoms have gone in to remission.

However, recently my IC symptoms have flared up and because my urologist and midwife are uncertain about using Usept during pregnancy, I'm going without any medication to help manage my symptoms. Because of this I've been having bouts of intense bladder pain, extremely frequent trips to the bathroom, and sex has been impossible because of vaginal pain.

I'm avoiding the foods (certain citrus) and drinks that usually bother me, but I haven't been able to find any relief and I'm very frustrated. There's very little information about IC and pregnancy available, so my doctors are trying to treat me very conservatively. I am concerned that my pre-natal vitamin may be aggravating my IC, so I'm going to ask for a new prescription when I next see my midwife.

Do any of you have any experience with IC or a related condition during pregnancy? If so, what was your condition like during pregnancy and what did you do to manage pain? How successful were you at managing pain?

If any of you can point me in the direction of any resources for pregnant women with IC, I would really appreciate it. I've read through http://www.ic-network.com/pregnancyjournal/ , but it hasn't provided me with much practical information.

Thanks in advance for any help and support you can give me.

Comments

( 3 comments — Leave a comment )
sara_super_id
Apr. 14th, 2008 11:30 pm (UTC)
You might have more sensitivities and allergies during pregnancy than you did before, and with pregnancy there could be extra pressure on your bladder.

Maybe you should try limiting what you eat more to avoid more flare up foods.
perfectcherry
Apr. 15th, 2008 12:09 am (UTC)
Thanks for your advice. I have planned to cut out some of the foods I've been eating the most of, like tomatoes and melons, to see if that makes a difference. Being pregnant I've been eating such a huge quantity of food and so many different types that it's difficult to tell what might be causing the problem, but I'm going to work on it.
bookofsecrets7
Apr. 18th, 2008 04:42 am (UTC)
:)
I know I am a guy, but I am also a nurse and well someone in pain as earlier explained, yet I dont have the same equipment I might be able to guide help a little. "noni juice" has been known to do wonders, I am trying to think of a herbal solution that might help, but I cant really remember off the top of my mind..:) You can alwats ask him for lidocain patches and see if that does not dmimish some of the pain, its not addicting and fairly safe. If thier is anything I can help with feel free to ask!! My heart is with you and I wish nothing but the best for you!!
( 3 comments — Leave a comment )

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